My post on a support page for other parents who faced or are facing struggle/loss:
"You all are not alone. We lost our three year old son due to complications from ttts this past October.
I struggle sometimes because I feel like I've been cheated. But I want you to know that if you struggle there too... You are not cheated. You have been chosen. Loss doesn't happen because we didn't try hard eno...ugh or because we didn't love deep enough. Ttts is a wicked thing, but our stories all speak to the best of humanity. Hope, longsuffering, struggle, and perseverance. We have a story to tell. If you lost one or both, you have been chosen to carry those names and the story of your struggle... It is heavy. Like a weight in your heart that is invisible to others... Always present, sometimes less painful, but always real.
We carry the story that these little ones were or are here!
My sons survived but one still died three years later from seizures, cerebral palsy, and microcephaly... I think sometimes I've been so cheated. Heck, I'm as good a mom as any great mom... But no, I'm chosen and blessed. Blessed to have lived in a time where I held a broken angel in my arms but couldn't find one flaw. Blessed to be a student of his life lessons / his 3yr. ministry. I am forever changed.
And guess what, he isn't broken anymore
"You all are not alone. We lost our three year old son due to complications from ttts this past October.
I struggle sometimes because I feel like I've been cheated. But I want you to know that if you struggle there too... You are not cheated. You have been chosen. Loss doesn't happen because we didn't try hard eno...ugh or because we didn't love deep enough. Ttts is a wicked thing, but our stories all speak to the best of humanity. Hope, longsuffering, struggle, and perseverance. We have a story to tell. If you lost one or both, you have been chosen to carry those names and the story of your struggle... It is heavy. Like a weight in your heart that is invisible to others... Always present, sometimes less painful, but always real.
We carry the story that these little ones were or are here!
My sons survived but one still died three years later from seizures, cerebral palsy, and microcephaly... I think sometimes I've been so cheated. Heck, I'm as good a mom as any great mom... But no, I'm chosen and blessed. Blessed to have lived in a time where I held a broken angel in my arms but couldn't find one flaw. Blessed to be a student of his life lessons / his 3yr. ministry. I am forever changed.
And guess what, he isn't broken anymore
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